Miracle for Matthew Fundraiser
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12th Annual Golf Tournament Fundraiser
Sunday, October 17, 2021 - Timacuan Golf Club, Lake Mary, Florida
Matthew Walker is the son of Jonathan & Cynthia Walker of Heathrow, Florida. Matthew will be 15 years old in September. He is one of three children, Morgan 18 and Adam 13 years old. On behalf of the Walker Family it is their hopes and wishes that you, your family, loved ones and friends are well and doing all you can to avoid the Coronavirus Pandemic.
Matthew is one of approximately 40 known males in the world born with a rare neuronal migration disorder of the brain called Subcortical Band Heterotopia. This disorder is one in which the white and grey matter of the brain are disorganized causing the communication pathways of the brain to be challenged, therefore causing significant impairment in his physical and cognitive abilities. Secondary to Matthew’s neurological disorder in recent years, he was diagnosed with a rare form of epilepsy known as Lennox Gastaut Syndrome causing life threatening seizures. Matthew is unable to walk or talk and is dependent upon his family and professionals to complete his activities of daily living. The ketogenic diet and medications are administered to Matthew through a feeding tube continuously on a daily basis for the control of several different types of seizures. Matthew continues to overcome many challenges. The corpus callosotomy brain surgery Matthew underwent four years ago continues to show successful results. Although, Matthew has been averaging 90 seizures per month this is significantly below the 60 seizures per day Matthew was experiencing prior to surgery.
It is very likely that over the past several months Matthew has experienced some of the best times in his life. Matthew's personality and behaviors have virtually come alive. This past year Matthew has made great progress. This coming September Matthew will turn sixteen years of age and has grown into an amazing young man, despite his many challenges. He still struggles with on average three to five seizures per day, but the doctors continually adjust his medication regimen for optimal outcomes. Thorough consultations with his healthcare providers identified and resolved urinary and bowl retention issues which has been the caused a great deal of discomfort and may be the reason for irritation and seizure. Matthew has returned to physical therapy after Covid restrictions eased. He is working on fundamentals such as transferring in and out of a vehicle, his wheelchair and bed safely and is making great progress. Matthew will be entering into 9th grade at Seminole High School this fall in the Exceptional Student Support Services of Seminole County, Florida. Due to Matthew's medical acuity, Seminole County School's Hospital Home Bound Services will continue to be available for home visits two days per week one hour per visit. Due to the Coronavirus these sessions will continue to be conducted via Zoom web-based video conferencing from his teacher.
The Annual Golf Tournament Fundraiser was created to assist financially for the care, special facilities and medical attention that Matthew’s ongoing disabilities require. Despite the Coronavirus Pandemic the tournament fundraiser will happen, however, a few changes have been made to this year’s event to ensure the safety of all in attendance. Out of concern and respect of the event contributors towards the auction, raffle and dinner activities a decision was made to forgo this portion of the Fundraising event with hopes to resume next year. A boxed lunch will be provided for all attending golfers. During the event masks should be used at the discretion of each golfer when six feet of distance from others cannot be avoided.
Last year's Golf Tournament Fundraiser was a great success despite the Coronavirus Pandemic! Special thanks to the following and the countless other organizations, families and friends that have given their hearts out to Matthew:
Raymond James Financial Services, Arnold Palmer Invitational by MasterCard, Walk on Water Boutique, Fast Signs Sanford FL, Lake Mary Pediatric Dentistry, Russie Weidl - Watson Realty, Mom's Club of Heathrow, James Ho, DMD PA, Intercontinental Hotels, Miami FL, Trademark Press Solutions, Pierce Jewelers, R.A.R.E Project, Timacuan Golf Club, Erica Karlinsky PhD, Heathrow Country Club, Zero Latitude Custom Home Design, Kids Docs/Florida Children's Physicians & Surgeons Inc., Steve Strassman Insurance/Allstate, Debby Taboh Photography, Park Jewelers, Heathrow Country Club, Orlando Magic, AmStar Cinemas, Vineyard Wine Company, Trianon Hotel Naples, Florida, Jackson Family Fine Wines, Rizzieri Salon, Friendly Confines Restaurant, Papa Joe's Pizza, Duffy's Sports Grill, Giovanni's Italian Restaurant, Miguel & Brittany de Arcos, Dr. Robert Hoover / Foot & Ankel Associates of Florida, sophie & trey, Digital Check Corp, Florida Pediatric Associates / Eye Physicians of Central Florida, Sherwin Williams, H&F Construction, Legacy Club at Alaqua Lakes, Seminole Harley-Davidson, Wiewiora & Dunn Orthodontics, Cato Environmental Services, Liam Fitzpatrick's, Dexters Restaurant, Spice World, Residence Inn by Marriott Lake Mary, Another Broken Egg Cafe, Tomasino's Pizzeria, Jeff Jones Jr. Golf Instruction, Central Florida Therapy, Center for Health, Learning & Achievement, Transitions Physical Therapy, Cara Grebler / Premier Realty Partners, Pristine Nails & Spa, Kennedy's All-American Barber, Nothing bundt Cakes, Collaborative Wealth, Orlando Solar Bears, Horne, Holmes, Crenshaw, Blake & Rathbun CPA's
For more details on Matthew's Golf Tournament Fundraiser please click on the Golf Tournament Registration Form button.