10th Annual Golf Tournament Fundraiser
Sunday, October 20, 1019 - Timacuan Golf Club, Lake Mary, Florida
Matthew Walker is the son of Jonathan & Cynthia Walker of Heathrow, Florida. Matthew will be 14 years old in September. He is one of three children, Morgan 16 and Adam 11 years old. Matthew is one of approximately 40 known males in the world born with a rare neuronal migration disorder of the brain called Subcortical Band Heterotopia. This disorder is one in which the white and grey matter of the brain are disorganized causing the communication pathways of the brain to be challenged, therefore causing significant impairment in his physical and cognitive abilities. Secondary to Matthew’s neurological disorder in recent years, he was diagnosed with a rare form of epilepsy known as Lennox Gastaut Syndrome causing life threatening seizures. Matthew is unable to walk or talk and is dependent upon his family and professionals to complete his activities of daily living. The ketogenic diet and medications are administered to Matthew through a feeding tube continuously on a daily basis for the control of several different types of seizures. Matthew continues to overcome many challenges on a daily basis. The Corpus Callosotomy brain surgery Matthew underwent two years ago continues to show successful results. Although Matthew has been averaging 90 seizures per month this is significantly below the 60 seizures per day Matthew was experiencing prior to surgery. Recently, to help Matthew with his current seizures he was prescribed Epidiolex/cannabidiol and is almost seizure free! It is likely that other medications may be omitted in time that are known to cause irritability and discomfort. Also, gastrointestinal issues prevail due to tube feeding 20 hours per day that causes reflux and other complications. However, changes have been made to try and help overcome this discomfort. Through the help of physical, occupational and speech therapy and Matthew's will to walk and communicate one day he is making great progress on new orthotics for his feet and Tobii Dynavox technology/computer to help him communicate. Matthew has a new quality of life and the team of doctors and therapist have been diligent in caring for Matthew's condition with various therapies and medication regimens. Matthew will be entering the 7th grade at Millennium Middle School in the fall with the help of the Exceptional Student Support Services of Seminole County, Florida. Due to Matthew's medical acuity, Seminole County School Hospital Homebound Services will continue to be available for home visits two days per week one hour per visit. In addition, Matthew will continue to receive physical, occupational and speech therapies to help him reach his ultimate potential. The Annual Golf Tournament Fundraiser was created to assist financially for the care, special facilities and medical attention that Matthew’s ongoing disabilities require.
Last year's Golf Tournament Fundraiser was a great success! Special thanks to the following and the countless other organizations, families and friends that have given their hearts out to Matthew:
Raymond James Financial Services, Arnold Palmer Invitational by MasterCard, Walk on Water Boutique, Fast Signs Sanford FL, Lake Mary Pediatric Dentistry, Russie Weidl - Watson Realty, Mom's Club of Heathrow, James Ho, DMD PA, Intercontinental Hotels, Miami FL, Trademark Press Solutions, Pierce Jewelers, R.A.R.E Project, Timacuan Golf Club, Erica Karlinsky PhD, Heathrow Country Club, Zero Latitude Custom Home Design, Kids Docs/Florida Children's Physicians & Surgeons Inc., Steve Strassman Insurance/Allstate, Debby Taboh Photography, Park Jewelers, Orlando Magic, AmStar Cinemas, Vineyard Wine Company, Trianon Hotel Naples, Florida, Jackson Family Fine Wines, M Salon Experience, Friendly Confines Restaurant, Papa Joe's Pizza, Duffy's Sports Grill, Giovanni's Italian Restaurant, Miguel de Arcos / Central Parc Development, Dr. Robert Hoover / Foot & Ankel Associates of Florida, sophie & trey, Digital Check Corp, Florida Pediatric Associates / Eye Physicians of Central Florida, Sherwin Williams, H&F Construction, Seminole Harley-Davidson, Wiewiora & Dunn Orthodontics, Cato Environmental Services, Liam Fitzpatrick's, Dexters Restaurant, Spice World, Residence Inn by Marriott Lake Mary, Another Broken Egg Cafe, Tomasino's Pizzeria, Jeff Jones Jr. Golf Instruction, Central Florida Therapy, Center for Health, Learning & Achievement, Transitions Physical Therapy, Cara Grebler / Premier Realty Partners, Pristine Nails & Spa, Kennedy's All-American Barber, Publix Supermarket at Cornerstone, Nothing bundt Cakes
For more details on Matthew's Golf Tournament Fundraiser please click on the Golf Tournament Registration Form button. Please consider coming out to meet Matthew, play some golf, have fun and help make Matthew's big day and days to come!
For more information please contact:
Miracle for Matthew Fundraiser
Please note, this website is under reconstruction. Check back for updates.