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7th Annual Golf Tournament Fundraiser
Sunday, October 16, 1016 - Timacuan Golf Club, Lake Mary, Florida
Matthew Walker is the son of Jonathan & Cynthia Walker of Heathrow, Florida. He is one of three children, Morgan is 13 years old and Adam is 8. Matthew is now 10 years old. He is 1 of approximately 40 known males in the world born with a rare neuronal migration disorder of the brain called Subcortical Band Heterotopia. This disorder is one in which the white and grey matter of Matthew’s brain are disorganized causing the communication pathways of the brain to be challenged, therefore causing significant impairment in his physical and cognitive abilities. Matthew is unable to walk or speak and is dependent upon his family and professionals to complete his activities of daily living. Matthew has a rare form of epilepsy know as Lennox Gastaut Syndrome. Matthew will experience Tonic-clonic (Grand Mal) seizures and head drop events that are potentially fatal but are currently being managed to some degree by an ongoing change to his medication regimen. This past year presented more challenges for Matthew as he continues to struggle with seizure and respiratory issues. Medication options have become limited. A Corpus Callosotomy and Vagus Nerve Stimulation (VNS Therapy) surgical procedures are now serious considerations for seizure control. Matthew is currently enrolled at Wicklow Elementary in Sanford Florida. Wicklow Elementary has the facility and specialized professionals trained in speech, occupational & physical therapies in order to assist Matthew reach his potential. He has been limited to attending school the past two years to two days per week due to his health conditions. The Annual Golf Tournament was created to assist financially in the care, special facilities, and medical attention that his ongoing disabilities require.
Last year's Golf Tournament Fundraiser was a great success! Special thanks to the following and the countless other organizations, families and friends that have given their hearts out to Matthew:
Raymond James Financial Services, Pediatric Neurology PA, Charles Schwab, Arnold Palmer Invitational by MasterCard, PGA National Golf Resort and Spa, Walk on Water Boutique,
Fast Signs Sanford FL, Lake Mary Pediatric Dentistry, Arnold Palmer Enterprises
Russie Weidl - Watson Realty, Lake Mary Pediatrics, Loos & Company, Mom's Club of Heathrow, James Ho, DMD PA, Intercontinental Hotels, Miami FL, Trademark Press Solutions, Pierce Jewelers, R.A.R.E Project, Timacuan Golf Club, Erica Karlinsky, PhD, University Diagnostic Institute, Heathrow Country Club, Blaise Trettis - Public Defender- Seminole/Brevard Counties, Zero Latitude Custom Home Design, Kids Docs/Florida Children's Physicians & Surgeons Inc., Steve Strassman Insurance/Allstate, Debby Taboh Photography, Park Jewelers, Orlando Magic, Westin Hotel and Shula's 347 Grill, AmStar Cinemas, Vineyard Wine Company, Trianon Hotel Naples, Florida, Jackson Family Fine Wines, M Salon Experience, Tera Mia Restaurant, Friendly Confines Restaurant, Artsy Abode Boutique, Orlando Foot & Ankel, Epilepsy Association of Central Florida, Central Florida Auto Dealers Association, Inc., Papa Joe's Pizza, Duffy's Sports Grill, Fusion Martial Arts, Another Broken Egg Cafe, Giovanni's Italian Restaurant, Miguel de Arcos / Sperry Van Ness Florida Commercial Real Estate Advisors, Seminole Youth Soccer, Dr. Robert Hoover / Foot & Ankel Associates of Florida, sophie & trey, Digital Check Corp, Florida Pediatric Associates / Eye Physicians of Central Florida.
For more details on Matthew's Golf Tournament Fundraiser please click on the Golf Tournament Registration Form button. Please consider coming out to meet Matthew, play some golf, have fun and help make Matthew's big day and days to come!
Miracle for Matthew Fundraiser