For more information please contact:

Jonathan Walker


8th Annual Golf Tournament Fundraiser

for Matthew

Sunday, October 15, 1017 - Timacuan Golf Club, Lake Mary, Florida


Matthew's Story

Matthew Walker is the son of Jonathan & Cynthia Walker of Heathrow, Florida.  He is one of three children, Morgan is 14 years old and Adam is 9.  Matthew is now 11 years old.  He is 1 of approximately 40 known males in the world born with a rare neuronal migration disorder of the brain called Subcortical Band Heterotopia.  This disorder is one in which the white and grey matter of Matthew’s brain are disorganized causing the communication pathways of the brain to be challenged, therefore causing significant impairment in his physical and cognitive abilities.  Matthew is unable to walk or speak and is dependent upon his family and professionals to complete his activities of daily living. Matthew has a rare form of epilepsy know as Lennox Gastaut Syndrome.  Matthew will experience tonic-clonic (grand mal) seizures and head drop events that are potentially fatal but are currently being managed to some degree by an ongoing change to his medication regimen.  The past year has presented additional challenges for Matthew.  A Vagus Nerve Stimulator (VNS Therapy) was surgically implanted for seizure control, unfortunately has not had much of an impact in decreasing seizure activity.  Matthew will undergo within the year a corpus callosotomy which is a surgical procedure of the brain. The Corpus Callosum helps the hemispheres share information, but it also contributes to the spread of seizure impulses from one side of the brain to the other. A Corpus Callosotomy is an operation that severs (cuts) the corpus callosum, interrupting the spread of seizures from hemisphere to hemisphere. Matthew has been enrolled at Wicklow Elementary of the Seminole County Schools Systems for several years.  This past year Matthew did not attend school due to his frailness related to seizure activity.  Seminole County Schools Hospital Homebound Services made available a teacher to visit with Matthew at home two days a week for one hour each visit to help him reach his ultimate potentials.  The Annual Golf Tournament Fundraiser was created to assist financially for the care, special facilities, and medical attention that Matthew’s ongoing disabilities require.

Last year's Golf Tournament Fundraiser was a great success!  Special thanks to the following and the countless other organizations, families and friends that have given their hearts out to Matthew:

Raymond James Financial Services, Pediatric Neurology PA, Charles Schwab, Arnold Palmer Invitational by MasterCard, PGA National Golf Resort and Spa, Walk on Water Boutique, 

Fast Signs Sanford FL, Lake Mary Pediatric Dentistry, Arnold Palmer Enterprises

Russie Weidl - Watson Realty, Lake Mary Pediatrics, Loos & Company, Mom's Club of Heathrow, James Ho, DMD PA, Intercontinental Hotels, Miami FL, Trademark Press Solutions, Pierce Jewelers, R.A.R.E Project, Timacuan Golf Club, Erica Karlinsky, PhD, University Diagnostic Institute, Heathrow Country Club, Blaise Trettis - Public Defender- Seminole/Brevard Counties, Zero Latitude Custom Home Design, Kids Docs/Florida Children's Physicians & Surgeons Inc., Steve Strassman Insurance/Allstate, Debby Taboh Photography, Park Jewelers, Orlando Magic, Westin Hotel and Shula's 347 Grill, AmStar Cinemas, Vineyard Wine Company, Trianon Hotel Naples, Florida, Jackson Family Fine Wines, M Salon Experience, Friendly Confines Restaurant, Epilepsy Association of Central Florida, Central Florida Auto Dealers Association, Inc., Papa Joe's Pizza, Duffy's Sports Grill, Giovanni's Italian Restaurant, Miguel de Arcos / Sperry Van Ness Florida Commercial Real Estate Advisors, Dr. Robert Hoover / Foot & Ankel Associates of Florida, sophie & trey, Digital Check Corp, Florida Pediatric Associates / Eye Physicians of Central Florida, Sherwin Williams, H&F Construction, Seminole Harley-Davidson, Savastano & Dunn Orthodontics, Cato Environmental Services, F&D Kitchen and Bar, Liam Fitzpatrick's, Dexters Restaurant

For more details on Matthew's Golf Tournament Fundraiser please click on the Golf Tournament Registration Form button.  Please consider coming out to meet Matthew, play some golf, have fun and help make Matthew's big day and days to come!



Please note, this website is under reconstruction.  Check back for updates.

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Matthew Sloan Walker Golf Tournament Fundraiser