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7th Annual Golf Tournament Fundraiser
Sunday, October 16, 1016 - Timacuan Golf Club, Lake Mary, Florida
Matthew Walker is the son of Jonathan & Cynthia Walker of Heathrow, Florida. He is one of three children, Morgan who is 12 years old and Adam 7 years old. Matthew is 9 year old who is 1 of approximately 35 known males in the World born with a rare neuronal migration disorder of the brain called Subcortical Band Heterotopia. This disorder is one in which the white and grey matter of Matthew's are disorganized causing the communication pathways of the brain to be challenged, therefore causing significant impairment in his physical and cognitive abilities. Matthew is unable to walk or speak and is dependent upon his family and professionals to complete his activities of daily living. Recently, Matthew was diagnosed with Lennox Gastaut Syndrome a rare form of epilepsy. Frequently, Matthew experiences multiple types of seizures daily that are potentially fatal but are currently being managed to some degree by a content change to his medication regimen. This past year presented more challenges for Matthew. Unfortunately he had several hospital visits to help overcome pneumonia, respiratory issues and infections. Medication options are becoming limited. Surgical Procedures have been considered. Currently, Matthew is participating in a medical study involving Epidiolex a form of Medical Marijuana. Studies have shown total elimination of seizures in patients. The family remains very optimistic. Matthew is currently enrolled at Wicklow Elementary of Sanford Florida. The facility has professionals trained in speech, occupational and physical therapies to help Matthew reach his potential. He has been limited to attending school this past year due to his health conditions. Matthew is making progress, however requires the care, special facilities, and medical attention his on going disabilities require. The Annual Golf Torunament Fundraiser was created to financially assist Matthew's ongoing medical needs.
Last year's Golf Tournament Fundraiser was a great success! Special thanks to the following and the countless other organizations, families and friends that have given their hearts out to Matthew:
Raymond James Financial Services, Pediatric Neurology PA, Charles Schwab, Arnold Palmer Invitational by MasterCard, PGA National Golf Resort and Spa, Walk on Water Boutique,
Fast Signs Sanford FL, Lake Mary Pediatric Dentistry, Arnold Palmer Enterprises
Russie Weidl - Watson Realty, Lake Mary Pediatrics, Loos & Company, Mom's Club of Heathrow, James Ho, DMD PA, Intercontinental Hotels, Miami FL, Trademark Press Solutions, Pierce Jewelers, R.A.R.E Project, Timacuan Golf Club, Erica Karlinsky, PhD, University Diagnostic Institute, Heathrow Country Club, Florida Pediatric Associates, Blaise Trettis - Public Defender- Seminole/Brevard Counties, Mercedes Benz of North Orlando, Premier Association Management of Central Florida, Zero Latitude Custom Home Design, Naples Beach Hotel & Golf Club, Kids Docs/Florida Children's Physicians & Surgeons Inc.,
Dr. Nicole Gagliano - Pediatrician - Physician's Associates, Steve Strassman Insurance/Allstate, Matthew Michael Salon, Debby Taboh Photography, Park Jewelers, Orlando Magic, Westin Hotel and Shula's 347 Grill, AmStar Cinemas, Vineyard Wine Company
For more details on Matthew's Golf Tournament Fundraiser please click on the Golf Tournament Registration Form button. Please consider coming out to meet Matthew, play some golf, have fun and help make Matthew's big day and days to come!
Please note, this website is under reconstruction. Please check back for updates.
Miracle for Matthew Fundraiser